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Sophia & M.E. Her Story.
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In Plain Sight.
Transparent Appraisals ?.
Voices from the Shadows.
Kay Gilderdale Trial
Jodi Bassett M.E. Book.
Response.
Rememberance Day
DOCUMENTS INDEX

1. General Medical Council index.
2.  Social Services Index.
3.  Legal index.



LINK TO A SUMMARY OF TOTAL NUMBER OF LETTERS AND DOCUMENTS PLUS NAMES AND ADDRESSES OF THE PARTIES INVOLVED



1.

GENERAL MEDICAL COUNCIL INDEX

DOCUMENTS SENT TO THE GENERAL MEDICAL COUNCIL LISTED IN CRONOLOGICAL ORDER, LINKS ARE PROVIDED TO GIVE ACCESS TO KEY DOCUMENTS

Letters 1 - 213, all those linked to will have a red border

    1   29 12 1999    Note from Dr Firth re. Chronic Fatigue Syndrome

    2   30 12 1999    Dr Firth- Professor Pinching

    3   10 01 2000    Dr Hartley- Dr Firth

    4   10 01 2000    St Bart's CFS team -Sophia

    5   14 01 2000    Mrs.Wilson - Dr Firth re. housing

    6   18 01 2000    Mrs.Wilson - Dr Firth re. sick note

    7   19 01 2000    Dr Firth, confirming post viral fatigue syndrome

    8   19 01 2000    Dr Firth, re district nurse and information about post viral fatigue syndrome

    9   20 01 2000    Mrs.Wilson - Dr Firth re Orange Badge

  10   24 01 2000    St Bart's CFU-Sophia

  11   25 01 2000    Guy's Hospital-Sophia

  12   26 01 2000    Social Services - Dr Firth re Orange Badge

  13   27 01 2000    Edwina Sabine. Physical disability Team - Dr Firth

  14   31 01 2000    Burrswood Healthcare - Sophia

  15   22 02 2000    Dr Firth - Edina Sabine re Dr Hartley's opinion

  16   28 02 2000    Assessment from Edwina Sabine re M E and appointment with Prof Pinching

  17   10 04 2000    Edwina Sabine - Sophia, confirming 'housing'

  18   19 05 2000    Bart's-Sophia re Research Project

  19   22 05 2000    Dr Firth re Post Viral Chronic Fatigue Syndrome

  20   15 06 2000    Bart's - Sophia re appointment

  21   15 06 2000    Consent form signed by Sophia

  22   03 07 2000    Disability Services - Dr Firth requesting support for Disability Benefit

  23   12 07 2000    Dr Firth - Occ.Ther.diagnosed PVCFS and Disability Benefit

  24   21 07 2000    Dr Firth re Post Viral Chronic Fatigue Syndrome

  25   25 07 2000    Dr Firth - the Mental Health Team

  26   25 07 2000    Dr Firth - physiotherapy

  27   09 08 2000    Dr Price, psychiatrist, - Sophia

  28   23 08 2000    House adaptations for Sophia's flat

  29   02 09 2000    Bart's - Sophia re appointment with Professor Pinching

  30   26 09 2000    Dr Firth - Sophia

  31   02 10 2000    Dr Price - Dr Firth.."no clear evidence of mood disorder, psychotic experience or cognitive behaviour"

  32   02 10 2000    Dr. Price - C.M.H.T.

  33                        Dr Firth - B.T. re. enquiries, also Severe M.E.

  34   09 10 2000    Dr Firth – Mrs.Wilson

  35   16 10 2000    Catherine Connolly, Social Worker, - Sophia

  36   25 10 2000    Psychiatric nurse - Dr Firth re the fact that Mrs Wilson did not wish input from CMHT

  37   30 10 2000    Nurse from Mill view mental hospital - Sophia

  38   06 11 2000    Dr Firth-Mrs. Wilson "...I strongly encourage you to accept this (help from CMHT)..."

  39   08 11 2000    Prof. Pinching - Dr Firth "... we are penalised for having long waiting times ...."

  40   20 11 2000    Dr Firth-Prof Pinching re referring Sophia to psychiatric team

  41   27 11 2000    Prof Pinching - Dr Firth

  42   27 11 2000    Physiotherapy - Dr Firth

  43   07 12 2000    Rehabilitation dept. - Sophia re a wheelchair

  44   20 12 2000    CMHT - Dr Firth

  45   22 12 2000    Dr Firth – Mrs.Wilson re other options suggested by Prof Pinching

  46   10 01 2001    Old church Hospital - Dr Firth re costing for a domiciliary visit

  47   18 01 2001    Dr Firth-Mrs.Wilson re CMHT and Prof Pinching’s appointment

  48   05 02 2001    Dr Firth - Catherine Connolly re Prof Pinching and offer of a visit

  49   08 02 2001    Catherine Connolly - Sophia explaining CMTH services

  50   10 03 2001    Mrs.Wilson - Dr Firth re update on Sophia

  51   21 03 2001    Mrs.Wilson - Dr Crossman re update on Sophia

  52   11 07 2001    Dr Firth – Mrs.Wilson

  53   19 07 2001    Mrs.Wilson-Dr Firth re problems with Sophia's teeth

  54   23 07 2001    Dr Firth - Dental Clinic

  55   26 07 2001    Dental Clinic - Dr Firth

  56   03 08 2001    Sophia - Dr Firth - wishing to take responsibility for her own decisions

  57   03 08 2001    Mrs.Wilson - Dr Firth re M.E. literature

  58   06 08 2001    Dr Firth-Catherine Connolly re ‘medical neglect' and' forcible hospital admission

  59   21 08 2001    Prof Findley - Dr Mims re Grade 4 patients

  60   04 09 2001    Mrs.Wilson - Dr Firth re M.E. information

  61   05 09 2001    Dr Mims - Dr Firth re supporting family

  62   12 09 2001    Dr Firth-Prof Pinching re possibility of a domiciliary assessment

  63   13 09 2001    Dr Firth - Dr Mims explaining referral to Prof Pinching

  64   24 09 2001    Prof Pinching - Dr Firth re 'no domiciliary visits"

  65   09 11 2001    Dr Firth - Dr Mims re no domiciliary

  66   21 11 2001    Dr Firth - Dr Mims re CFS team from Romford Hospital

  67   28 11 2001    Mrs.Wilson - Dr Firth re DLA wishing Mrs Wilson to be Sophia’s nominee

  68   03 12 2001    Confirmation by Dr Firth of Chronic Fatigue Syndrome

  69   11 12 2001    Dr Mims - Dr Findley formally referring Sophia to Romford CFS clinic

  70   16 01 2002    Mrs.Wilson - Dr Firth re medicine

  71   17 01 2002    Dr Firth – Mrs.Wilson re costings for visit and requesting update on Sophia

  72   06 02 2002    Dr Firth – Mrs.Wilson re costing for CFS visit from Romford

  73   06 02 2002    Dr Mims - Prof Findley re costings for domiciliary visit to Sophia

  74   08 02 2002    Mrs.Wilson - Dr Firth re update on Sophia

  75   26 02 2002    Health Authority - Dr Firth agreeing costs for domiciliary visit

  76   07 03 2002    Dr Firth - Jill Slorance OT from Romford re agreed visit

  77   26 04 2002    Dr Firth- Jill Slorance re "... .diagnosed as having CFS at the end of 1999..."

  78                         Jill Slorance – Mrs. Wilson re report of their 'findings'

  79   01 05 2002    Jill Slorance's report (from Romford) - Dr Firth *

  80   27 05 2002    Social Security - Sophia no longer dealing with her affairs

  81   24 06 2002    Romford - Director of Brighton and Hove Public Health

  82   26 07 2002    Dr Firth - Jill Slorance re "..specialised knowledge of Chronic Fatigue.."

  83   05 08 2002    Jill Slorance – Mrs.Wilson re "..graded plan..."

  84   05 08 2002    Jill Slorance - Dr Firth ".. .inpatient admission to our C.F.S. Unit ...."

  85   08 08 2002    Dr Firth - OT re CFS report from Oldchurch Hospital

  86   08 08 2002    Brighton and Hove - Romford re initial expenses

  87   29 08 2002    Romford Hospt - Sophia re assessment costs

  88&n   89   03 09 2002    Confirmation by Dr Firth re Sophia's Chronic Fatigue Syndrome

  90   16 11 2002    Dr Firth-Mrs.Wilson re "...I would continue to support you whatever decision was taken.

  91   17 09 2002    Dr Firth - Dr Baginski, psychiatrist re CFS and Romford Hospital

  92   19 09 2002    Dr Firth - Jill Slorance re Sophia's admission

  93   30 09 2002    Admission form from Oldchurch Hospital to Sophia

  94   01 10 2002    Catherine Connolly-Dr Baginski "... insufficient grounds for detention under section of the Mental Health Act..." *

  95   14 10 2002    Mrs.Wilson - Oldchurch Hospital re admission

  96   05 11 2002    Dr Baginski-Dr Firth "..I did not really understand her fears..."

  97   25 11 2002    David Lepper mp – Mrs. Wilson re ME

  98   27 11 2002    Dr Baginski - Dr Firth re the outcome of his visit to Sophia

  99   03 12 2002    Dr Baginski - Paul Goldreich, clinical psychologist I am planning to see her mother on a regular basis..."

100   09 12 2002    Dr Baginski - Dr Firth re his decision to implement his threats to Sophia and and her mother

101   02 01 2003    Dr Baginski-Dr Firth "..You also expressed your readiness to assess her mother under the Mental Health Act..."

102   08 01 2002    Blue Badge Scheme – Sophia

103   13 01 2003    Dr Firth - Dr Baginski re admission to CFS Unit and if not. "in patient care in Brighton"

104   16 01 2003    Dr Baginski - Dr Firth re making arrangements facilities (Mill View mental hospital) Brighton,should Sophia refuse admission in Old church Hospital,would she complete recommendation for admission under Section 2 .

105   18 01 2003    Mrs.Wilson – Mr.Winbow requesting help

106   28 01 2003    Dr Winbow – Mrs.Wilson re inability to help

107   24 01 2003    Dr Firth - Dr Baginski "....1 would be prepared to recommend Sophia's admission for assessment under Section 2"

108   30 01 2003    Dr Firth - Mrs.Wilson requesting update on Sophia

109   24 01 2003    Dr Baginski - Dr Firth ??

110   28 01 2003    Oldchurch admissions to Sophia

111   28 01 2003    Oldchurch admission to Sophia

112   30 01 2003    Mrs.Wilson - Dr Firth, update on Sophia and interview by Dr Baginski *

113   05 02 2003    Dr Firth - Dr Baginski re update on Sophia

114   06 02 2003    Sophia - Dr Firth explaining her reasons for not wishing to be admitted to Oldchurch hospital, also asking for copies of her notes

115   07 02 2003    Sophia to Oldchurch Hospital informing them of her decision

116   07 02 2003    Mrs.Wilson - David Lepper MP informing him of the situation

117   30 01 2003    Transcribed notes from tape made at Dr Firth's last visit to Sophia *

118   09 02 2003    Mrs.Wilson to David Lepper MP explaining how ME affects Sophia

119   11 02 2003    Dr Firth - Dr Baginski re Grade 4 M.E., also her reasons for no: continuing as her GP

120   12 02 2003    Dr Baginski - Dr Firth confirming admission under Section 2 should Sophia refuse to go into the Chronic Fatigue Unit in Romford

121   17 02 2003    Dr Firth- Sophia re charges for copies of notes

122   20 02 2003    Sophia - Dr Firth requesting answers to her questions

123   25 02 2003    Mrs. Vandevelde - Sophia re Health Records

124   05 03 2003    David Lepper - Dr Firth re Mental Health Legislation

125   12 03 2003    Mrs.Wilson - David Lepper re Partnership with Patients

126   12 03 2003    Mrs.Wilson - Dr Firth " .the Department of Health does not regard ME as a mental illness..."

127   13 03 2003    Mrs.Vandevelde - Sophia re Health records

128   24 03 2003    Dr Firth - David Lepper re Grade 4 M.E, also that she agrees with Dr Baginski if Sophia continues to refuse to be admitted to Oldchurch Hospital, she should then be sectioned under the Mental Health Act

129   24 03 2003    Dr Firth – Mrs.Wilson re copies of notes, letter to David Lepper and Dr Baginski's explanation

130   04 04 2003    Mrs.Wilson to David Lepper re Sophia's notes from Dr Firth

131   07 04 2003    Prof Findley - Sophia re removal from waiting list

132   17 04 2003    Mrs.Wilson – Mrs.Vandevelde re - witholding of notes

133   17 04 2003    Mrs.Vandevelde - Sophia re notes

134   17 04 2003    Mrs.Vandevelde – Mrs.Wilson re Sophia's notes

135   22 04 2003    Sophia – Mrs.Vandevelde re notes, full consent

136   22 04 2003    Mrs.Wilson to Mrs.Vandevelde re Sophia's notes and those on Mrs.Wilson

137   23 04 2003    Receipt for letter

138   28 04 2003    Mrs.Vandevelde - Sophia re 'new form'

139   28 04 2003    Mrs.Vandevelde – Mrs.Wilson "..no personal health records for you..."

140   30 04 2003    David Lepper- Mrs.Wilson re Dr Firth's response

141   01 05 2003    Dr Blunden, psychiatrist - Sophia re 2nd opinion

142   06 05 2003    Mrs.Wilson - David Lepper re notes

143   06 05 2003    Mrs.Wilson – Mrs.Vandevelde re notes for Mrs.Wilson

144   06 05 2003    Sophia – Mrs.Vandevelde re notes

145   06 05 2003    Second application by Sophia for her notes

146   06 05 2003    Application by Mrs.Wilson for her notes

147   07 05 2003    Receipt for letters

148   10 05 2003    Dr Lipscombe - Dr Hartley for second opinion on Sophia

149   17 05 2003    South Downs Board of Directors

150   18 05 2003    Brighton and Hove Primary Care Trust

151   17 05 2003    Mrs.Wilson - Dr Rosenberg, Acting Chief Executive and Medical Director South Downs Health NHS Trust *

152   19 05 2003    Mrs.Vandevelde – Mrs.Wilson re letter to Dr Rosenberg

153   20 05 2003    Burrswood Healthcare – Mrs.Wilson

154   21 05 2003    Mrs.Wilson - Court Manager giving copy letter to Dr Rosenberg

155   21 05 2003    Mrs.Wilson - Mr.Hogan Manager CMHT Re Dr Rosenberg's letter

156   21 05 2003    Mrs.Wilson – Mr.Long, Dir. Social Services re Dr Rosenberg's letter

157   22 05 2003    lan Long – Mrs.Wilson re Dr Rosenberg's letter

158   19 05 2003    Receipts for above letters

159   19 05 2003    Receipt for above letter

160   22 05 2003    Receipts for above letters

161   22 05 2003    Receipt of letter to lan Long

162   28 05 2003    Dr Hartley - Dr Lipscombe re - that Sophia no longer has CFS *

163   02 06 2003    Dr Hartley - Mrs.Wilson bill for 2nd opinion sent to Mrs. Wilson, not Sophia

164   02 06 2003    Sophia - Dr Hartley pointing out many discrepancies *

165   02 06 2003    Mrs.Wilson - Dr Lipscombe re - Burrswood Healthcare

166   02 06 2003    Mrs.Wilson - Sylvia King , Sophia's solicitor

167   02 06 2003    Mrs.Wilson - Magistrate's Court re letter to Dr Rosenberg

168   02 06 2003    Mrs.Wilson - Dr Rosenberg requesting a reply

169   02 06 2003    Receipts for letters (also 170)

171   03 06 2003    David Lepper to Mrs.Wilson

172   04 06 2003    Dr Hartley - Sophia re his incorrect diagnosis of CFS on last visit

173   05 06 2003    Dr Lipscombe – Mrs.Wilson and Sophia rejecting Burrswood Healthcare

174   19 06 2003    Mrs.Wilson - Dr Rosenberg requesting answers to questions

175   19 06 2003    Mrs.Wilson - Gary Needle outlining Doctors current opinions *

176   20 06 2003    Receipts for letters

177   23 06 2003    Receipts for letter

178   23 06 2003    Catherine Connolly gets the Warrant to enable Sophia to be Sectioned under theMental Health Act

179   24 06 2003    Gary Needle – Mrs.Wilson ". .we do not feel that the GP' s standards of care are called into question in this case...."

180   30 01 2003    Sylvia King - Sophia outlining the legal position *

181   28 06 2003    Mrs.Vandevelde – Mrs.Wilson re - various issues

182   11 07 2003    Police notice to occupier of premises searched

183   11 07 2003    Transcript of tape made during sectioning of Sophia *

184   11 07 2003    Joint Medical Assessment by Dr Baginski and Dr Firth

185   11 07 2003    Your Rights under the mental health act 1983

186   14 07 2002    Mill View Hospital – Mrs.Wilson

187   17 07 2003    Dr Baginski's psychiatric report on Sophia

188   18 07 2003    Nursing report

189                         CV of Dr Weir

190   21 07 2003    Medical report on Sophia by Dr Weir

191   26 07 2003    Decision of Mental Health Review Tribunal *

192   24 07 2003    Discharge summary by a locum

193   06 08 2003    Dr firth - Sophia removing her from the practice

194   08 08 2003    Primary Care Services to Sophia

195   08 08 2003    Sophia-Dr Lipscombe requesting notes to be typed

196   11 08 2003    Sophia-Dr Lipscombe requesting clarification of Dr Lipscombe's position

197   12 08 2003    Mrs.Wilson - Dr Rosenberg re notes

198   12 08 2003    Sophia - Dr Rosenberg re notes 199    Receipt for letters

200   19 08 2003    Dr Liposome - Sophia "... I was not aware that you had become my patient ..."

201   04 09 2003    Mrs.Wilson and Sophia to PCT re her fears of doctors

202   09 09 2003    Dr Firth - Sophia and Mrs. Wilson re incomplete notes

203   09 09 2003    Patient Services - Sophia re new doctor, Dr Clarke

204   25 09 2003    Jan Vandevelde - Sophia re notes and "..Dr Baginski no longer works for the Trust.."

205   10 01 2006    Dr Clarke's letter which was read out at the coroner's court in June 2006. This contains a number of inaccuracies *

206   18 01 2006    Mrs.Wilson - PCSS requesting notes as Sophia's personal representative

207   26 01 2006    PSM – Mrs.Wilson refusing Sophia's records

208   13 02 2006    Neuropathology report on Sophia's spine, the family requested this research.

209   04 03 2006    Mrs.Wilson - Coroner giving copy of report

210   15 03 2006    Coroner – Mrs.Wilson allowing Dr O'Donovan, the neuropathologist, to give evidence at Sophia's inquest

212   19 02 2006    Sophia's death Certificate - SHE DIED AS A RESULT OF ACUTE RENAL FAILURE ARISING FROM THE EFFECTS OF CHRONIC FATIGUE SYNDROME

213                         Sophia's original incomplete GP's notes along with the typed version




2.

SOCIAL SERVICES INDEX


THE INDEX BELOW GIVES LINKS TO THE LETTERS SENT TO Mr JOHN CROSSLAND AT SOCIAL SERVICES MOST OF WHICH ARE DUPLICATES OF THOSE SENT TO THE GENERAL MEDICAL COUNCIL BUT ARE NUMBERED TO CO-ORDINATE WITH THOSE IN THE LETTER TO JOHN CROSSLAND.


all will have a blue border

  1   16 10 2000    Catherine Connolly, Social Worker, - Sophia

  2   30 12 1999    Dr Firth- Professor Pinching

  6   06 08 2001    Dr Firth-Catherine Connolly re ‘medical neglect' and' forcible hospital admission *

  7   01 10 2002    Catherine Connolly-Dr Baginski "... insufficient grounds for detention under section of the Mental Health Act..." *
  8   02 01 2003    Dr Baginski-Dr Firth "..You also expressed your readiness to assess her mother under the Mental Health Act..."

  9   30 01 2003    Mrs.Wilson - Dr Firth, update on Sophia and interview by Dr Baginski *

10   11 02 2003    Dr Firth - Dr Baginski re Grade 4 M.E., also her reasons for not continuing as her GP

11   12 02 2003    Dr Baginski - Dr Firth confirming admission under Section 2 should Sophia refuse to go into the Chronic Fatigue Unit in Romford

16   17 05 2003    Mrs.Wilson - Dr Rosenberg, Acting Chief Executive and Medical Director South Downs Health NHS Trust *

17   23 06 2003    Warrant to search for and remove Sophia made by Catherine Connolly.

18   23 06 2003    Application by Social Worker for admission to mental hospital.

19   23 06 2003    Aproved Social Worker report and record of work done.



THESE ARE OTHER LETTERS TO AND FROM SOCIAL SERVICES, THE SOLICITOR AND THE INDEPENDENT INVESTIGATING OFFICER.

  20   29 11 2006     Terry Pegler to Criona Wilson. *

  21   19 04 2007     Criona Wilson to Mr. john Crossland. *

  22   07 07 2007     Criona Wilson to the investigating officer. *

  23   11 07 2007     STATEMENT OF COMPLAINT. *

  24   25 06 2003     S. King, solicitor to Sophia *

  25   undated           Shane Wilson to the investigating officer. *

  26   25 10 2007     Report from the independent investigating officer. *

  27   23 11 2007     Michael Mergler (Adjudicating officer) to Criona Wilson. *

3.

LEGAL INDEX

THE INDEX BELOW GIVES LINKS TO THE LETTERS 1 - 18 REFERRED TO IN THE LETTER TO LORD GOLDSMITH DATED 1ST JUNE 2007

all will have a purple border

  1   19 06 2006    Death Certificate

  2   28 09 2006    Covering letter to GMC re:- Complaint Overview

  3   28 09 2006    Complaint Overview   *

  4   16 10 2006    formal complaint to SOCIAL SERVICES    *

  5   29 11 2006    J.Crossland to C.Wilson re:-complaint against C.Connolly - social worker.   *

  6   19 04 2007    C.Wilson to J.Crossland re:- sectioning and taking complaint further   *

  7   24 05 2004    Legal Services Commission refusal of funding legal aid

  8   01 05 2002    J.Slorance to Dr. Firth re:- romford clinic report   *

  9   09 12 2002    Dr. Baginski to Dr. Firth re:-decision to implement threats to Sophia and her mother

10   13 01 2003    Dr. Firth to Dr. Baginski re:- admission to CFS Unit and if not,"in patient care in Brighton"

11   24 01 2003     Dr. Firth to Dr.Baginski

12   12 02 2003    Dr. Baginski to Dr. Firth confirming admission under section 2 should Sophia refuse to go into the Chronic Fatigue Unit in Romford.

13   02 01 2003    Dr.Baginski to Dr. Firth - "....you also expressed your readiness to assess her mother under the Mental Health Act....."

14   01 10 2002    catherine Connolly to Dr. Baginski "...insufficient grounds for detention under section ofthe Mental Health Act...."    *

15   23 06 2003    Catherine Connolly gets the warrant to enable Sophia to be sectioned under the Mental Health Act.

16   17 05 2003    Mrs. Wilson to Dr. Rosenberg Acting Chief Executive and Medical Director South downs NHS Trust*

17   19 06 2003    Mrs.Wilson to Dr. Rosenberg requesting answers to questions

18   02 06 2003    Mrs. Wilson to Magistrate's Court re letter to Dr.Rosenberg


OTHER RELEVENT LETTERS

 19   25 06 2003    Sylvia King, Solicitor to Sophia. *

 20   20 06 2007    Dept. of Health to Criona Wilson.

 21   09 07 2007    Criona Wilson to Baroness Scotland.

 22   26 07 2007    Attorney Generals Office to Criona Wilson.

 23   17 12 2007    Health records to Criona Wilson.

 24   09 01 2008    Health records to Criona Wilson.



LINK TO A SUMMARY OF TOTAL NUMBER OF LETTERS AND DOCUMENTS PLUS NAMES AND ADDRESSES OF THE PARTIES INVOLVED




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